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At the beginning of the week Danny was unwell due to his vaccinations we think as it only lasted a couple of days or if you believe his consultant it was down to the swedish nose!!! Since then he has been back on form, shouting and flirting with anyone who happened to be around! Today he had a new staff member to look after and all he did was flirt all day, I think they were quite impressed. (more…)

Today has been a very eventful day. Danny’s peep went down to 6 which hasn’t phased him so far. He isn’t tired and for a couple of minutes he was tried on a swedish nose which also didn’t phase him. For those of you that do not know, this is what Danny would have at the end of his trachy should he continue to do well with the reduction of his peep, it would be instead of a ventilator. (more…)

Danny has been a good boy again today, he is still very snotty and bile is pouring out of him more than usual but he stays happy regardless. I couldn’t go in today because Tom’s nan has gone away for the weekend so I spent the day with him which was nice although I did the cleaning. Tom gave me a helping hand!!! Dan has had some water play today but judging by his clothes he was sat in it but I am told that wasn’t the case, he just drowned the floor where he was sitting. I am told he had a great time. (more…)

Danny was a little out of sorts yesterday, his cold has made it so he is working a bit harder at his breathing as his respirations were up a little and he was nasal flaring too. He also had bright yellow bile which is always an indications that he is off colour. I had to keep him unclamped as he kept coughing and wretching. Thankfully he has settled today although he is still very snotty. He was happy in his self but the little monster would not go to sleep. I put him in his pushchair to see if this would help but he just played, kicking his feet together. That boy does everything with his feet!! He finally fell asleep in the car on the way back to the hospital which wasn’t great as I had forgotten his pj’s so had to disturb him so I could change him so he wasn’t too impressed. (more…)

Danny has been a little off colour today, his teeth and his cold probably. He has also been a little wheezy the last couple of days on and off but this isn’t unusual when he has a cold as he gets so many more secretions.

He makes me smile at the moment because he always wants to be on his feet, when we try to sit him down, his legs just lock in the standing position. He is constantly trying to pull himself up, mostly on people. (more…)

Dan has not been his best today, his cold I think. He has had loads more suction than normal because he has been coughing and wretching. His mickey button (gastrostomy) is leaking also and turning round which is not supposed to happen so I think it is going to need replacing, well he has had it since last December and I think the surgeon said it is normal to get 6 months out of one. (more…)

Danny has been on form today we are told as we didn’t go in till this evening. The play specailist has been with him however and he always gets lots of attention when she is there. (more…)

Today is Kyle’s 9th birthday so Happy Birthday Ky. He has spent the day with his mother so he will have our presents to open next weekend. (more…)