700

Unusual title for a posting I have to admit but there is a reason for it.  It may just seem like an oddly random number but I have to say I really wish it was.  700 is the number of day’s that Daniel has been an inpatient with the Queens Medical Centre (QMC), no you haven’t mis-read it Daniel has been an inpatient for 700 days now. 

A lot has happened during that time…..lets see.  Apple released the first iPhone and then released the second edition the iPhone 3G.  George Bush stationed 21,500 troops in Iraq; Jade Goody insulted India over the racism row with Shilpa Shetty; Microsoft Officially launched Windows Vista and Office 2007; Madeleine McCann went missing while on holiday with her family; The millenium dome was refurbished and launched as the O2; The final Harry Potter book Harry Potter and the Deathly Hallows was launched and sold over 11 million copies in the first 24 hours; The American movie script writers went and strike…..then back to work again!; HM Customs and Revenue looses two disks with personal details of over 7.5 million households and much much more, during all of this Danny has been in hospital.

We were recently given a absolute going home date of the 28th November 2008 however there is some doubt as to whether this can actually be achieved now so we really don’t know when Daniel or we can ever escape this situation.  This got me thinking about a few things; one of which is the cost of this to ourselves.  So I sat down and worked things out, what I found out was quite amazing really so much so I didn’t realise how much it had cost us; all in it has cost us somewhere in the region of £20,000 when we take into account the travelling costs, food at the hospital, lost work etc.  Which then got me to wondering what we will actually do once we get home.  I mean I cannot remember what we did before hospital, the routine that we have is breakfast, hospital (work then hospital for me), home, bed and then do it all again the next day.  I’m beginning to think we will need some kind on community rehabilitation program to help us adjust to ‘normal’ life.

But anyhow I just thought I would share this little “celebration” with you all, good night and god bless.

Turbulence

Danny Ben has had a turbulent time over the last couple of weeks. After a week of being poorly and me pulling my hair out and the fact no one seemed to have a clue what was wrong with Dan, he went for a CT Scan. The doctors and us as his parents had theories of what was wrong but that became only the half of it. Read the rest of this entry »

2 year old AKA Danny Ben

Danny Ben has turned into a gorgeous laid back little boy which I whole heartedly have to admit he gets from his father. Although Rob would say when I find him I’ll let him know!!! Danny has been walking now for a few months and now gallops to the washer and the cooker when they beep as a matter of urgency. He is soo funny because I never see him get up so fast as I do when these appliances are beeping. He is so smiley all the time and gives exactly the same cheesy grin that Tom does. He is such a pleasure to have and both Rob and I feel soo lucky and proud that he is ours as he has continued to do so well despite the medical profession predicting he wouldn’t. Read the rest of this entry »