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Sorry for the lack of writing recently, we never seem to get anytime because by the time we have taken Danny back to the hospital and got Tommy into bed, it’s late and I am so tired. Danny is still doing soo well, it feels like someone will pinch me and I’ll wake up at anytime.Tom is doing superbly too with his pooing on the potty so both of them are doing well for a change. Tom still gets ill though all the time bacause he is always run down. (more…)

Dan Dan is doing really well at the moment, he has had a running nose and something dodgy is going on with his finger nails but apart from that he is good. He is getting around his environment well so hopefully it won’t be long before he is walking. He is spending an hour and a half a off his ventilator a day and having no problems. He is somewhat miffed when we put him back on the ventilator so much so he trys to pull the whole thing off, trachy included!!! (more…)