Hmm, hunger or teeth?

Either our son is not being fed enough or he is teething!

Danny boy seems to want to chew on everything………………………………………….well except food. He will drink juice though so there’s hope yet. He did another hour off his ventilator today as we knew he would. We don’t know how much Dan is capable of doing off his ventilator but we do know he is capable of alot more than certain people give him credit for.

 The PCT have said that the specialist nurses will be in position on 21st April and that the interviews for carers will take place on the 22nd. I would like to know why it has taken 2 months for these nurse to be in position as the interviews were at the beginning of March. We were told the whole process would take 3 months but is going to be more like 5 because after the carers are employed they will also need an induction period of a month which means Dan will have turned two before he is discharged. It is not acceptable.