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Within the last week Dan has not been well, he has had diarrhea which was quite funny as the samples that were sent to microbiology were from his nose and trachy, I wasn’t aware these came out of Dan’s bottom but then he does do everything backwards!. (more…)

Sorry I have not blogged over the last few days, (more…)

A friend of mine sometime ago said to me that Dan’s website was starting to become a “war on the NHS” and at that time it did start to feel like it. When I first setup dan’s site it was all about how Dan was doing but it was also about “living the dream”, to help people who were about to enter the same situation know what sort of things they should expect “warts and everything”. There are some times when things are really going great and you could not ask for more then there are times where there leaves a lot to be desired. At present we are having a number of problems with regard to Dan which has meant like all parents we are having to fight for whats best for our child, my hope is in doing this it does not come across as another war. That said heres todays update………. (more…)