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Rob, Kyle, Bridie, Tom and I have come to Cornwall for a few days for a much needed break. Not because of Dan but because of everyday life that now is. Dan has had a stormy few days, he is still full of cold and reacting bad to his booster immunisations that he had last week. He is still managing to smile occasionally but is back in oxygen. When we came camping in May it didn’t feel so bad leaving him because we were just down the road but now we are in Cornwall and its not a five minute trip back, I miss him so much more and the fact the cheeky the little monkey isn’t feeling to great makes me feel all the more bad for not being with him. I know he is being well looked after because he has had great nurses since we have been away but I still miss him. Rob feels the same. Dan has also changed his milk now to big boys milk called nutrini and is coping well with it

On Friday I was taken into the ward managers office again by Dans own consultant and the ward manager. I assumed it was to talk about what happened the day before. I stated what I was told by the nurse and told them that I had asked to speak to the doctor to apologise as I subsequently found out that this was not what the doctor had said. Dans consultant thought I might have misunderstood the nurses sense of humour but I don’t think I did even though I know this nurse has a great sense of humour because I asked the nurse if they were being serious and they said yes but whatever, whats done is done and I did apologise.

Dans consultant and the ward manager told me thats not what they wanted to talk to me about. They said Dan would be moved back onto the main unit, to which I asked why as this confused me somewhat. From what they said to me I assumed they have several patients now with colonising MRSA. I was very shock by this, so was Rob when I told him.   As a precaution they have also elected to test the staff which we assume is to enure that there is no one else colonising it.  They said after a few days Dan would be moved back into the cubicle and then probably out onto the ward again. I asked why Daniel couldn’t stay in the cubicle once the other MRSA patients had moved on, to which they said one of them wouldn’t be going anywhere fast. They also said Dan is High dependency and is taking up a nurse of his own which if you have been reading past postings you will know they haven’t got the staffing numbers to do this. They said they have to find another solution for Dan as whilst he is there it is causing them problems. The ward manager has the task of finding that solution. The few that were put forward is that Dan and this other long stay patient go round to the high dependency unit which is not open due to staffing issues, and they would be looked after there so they could reopen PICU to other patients. Another option was for Dan to go to a ward or if I understood correctly be looked after somewhere in the community but as far as Rob and I are concerned the latter two are not an option for us. Our son is not a parcel who can be past around. The wards I have been told by staff and relatives of other PICU patients aren’t up to much and after our experince on the neo natal unit in this hospital we are not prepared to chance it as once you have been transferred it is very hard to moved to a better place. When it comes to things like this we are not very trusting as once biten, twice shine and we were given the talk by a politician at the city once and it then became an up hill battle to get any decent care for Dan. As far as Rob and I are concerned there are two options, for Dan to go to the high dependency unit or we will be taking him home. They both did say they would do what’s in Dans best interests and I do believe them but they are not the ones pulling the strings, it is coming from higher up. These people we feel will not have Dans best interests at heart as they didn’t before when we were on the neo natal unit as to them dan is just a number

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