Red tape
Posted: January 29th, 2007 | Author: Rob | Filed under: Baby Brussel | No Comments »
Dan has continued to do really well since friday, throughout saturday he continued to only be in “air” and generally being really chilled out and having fun when he’s been on his play mat. It has been really great to see him doing so well after being so poorly the week before, Tom spent some time with Dan on Saturday and while he got bored quickly, standard 3yr old, he did help him to play with his toys and at one point fetched a tv & video for him to watch Monsters Inc on. Amazing really that Dan being 6 months old no has only watched Tv 3 times now! The one shock of the day was when we first got down to Dan in the morning and found the nurses doing another trachy tube change, which had only been done 2 days before. It turned out that when they took it out it was blocked off with secretions, Read the rest of this entry »
It would seem that since Dan’s illness last week things are going from strength to strength. Today he was out on his playmat as usual and for it he was put on his dry circuit, this is the tubing from his ventilator which on the dry circuit does not have a humidifer, and Julie could not see where the oxygen pipe was attached. So she asked one of the nurses where it was as it must have been connected as Danny was saturating at 100%, so she looked and showed her where it was connected. However, that was not it as it was connected to the wet circuit, which has the humidifier attached, after looking again they found that it was not attached which mean Dan was in “air” again which he’s not been in for about a month now. He’s now been in air for the entire day and also now that he’s asleep which is amazing as this is such a major milestone for Danny, if he maintains this then that would be awesome but best to try not to get too carried away just yet. The unit is once again very busy which tends to mean that little Dan gets overlooked, as a result we both have concerns over what impact this new influx of patients will have on our son’s overall care. This is something that we have spoken to the staff about previously so the hope is that it won’t happen but we’ll see.
Today has been a much better day for little Danny, he seems to be finally coming out the other side of his recent infection. He’s been really happy today, smiling and coo-ing while were playin with him which is just so good to see after how he was last week. He has continued to tolerate his feeds which has been slowly increased through the day. Although at one point during the day one of the consultants wanted to put Danny back on TPN but Julie said that she did not want him to go on it yet and they should give him til tomorrow to see if he was still tolerating his feed. She went off to discuss this with Daniels normal consultant and she agreed that this would be ok and said that they were not to start the TPN unless it was still nessecary tomorrow. At this point in time he is now at 20ml per hour, which is being increased 2ml every 4hrs, and his stomach is not showing any signs of becoming distented nor is he showing any signs of discomfort with it. Lets keep our fingers crossed that Dan keeps moving forward.
Well maybe not always a smile but it looks like little Danny is finally starting to come out the other side of his septicemia. He has been really poorly for the last week and from last tuesday until Saturday his milk feeds were stopped as his tummy was distended and was making him very uncomfortable. On saturday his feeds were restarted at just 10ml per hour, down from 36ml per hour before his septicemia, but after a few hours it was found that he was just not tolerating it. So on Sunday they restarted them again at a meer 2ml per hour but again after a few hours he stopped tolerating it as his stomach became distended once again. They were restarted again 
There has been a great deal on global warming recently in light of the adverse weather conditions that are currently running across the planet. There are 
much more that can be done to help tackle this problem that will affect everyone in the end. One thing maybe someone reading this may be able to answer, as I know my good friends from the NHS read this site, is “why does the 
as there were no facilities that we were aware of while over at the City Hospital. This is something that we feel strongly about so much so that we have been putting all of our recycling in black bags and taking them home to be recycled. I mean come on where is the “green” policy here!! Should the government not be doing something to bring in policies in places such as this as there is a massive amount of waste generated. Lets face it hospitals save lives but what about the planet we live on? If anyone has similar experiences or feelings then add your comments below.
