Posted: October 15th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
Well yesterday was certainly a busy day for little Danny. The Ear Nose and Throat (ENT) specialist came to see us to let us know what he found from his examination that he did on Friday and what he wanted to see happen next. He told us that they believe that Danny has Tracheomalacia (I think this was what it was, the link described what he said), and that they need to first perform a CAT scan and then to perform a full examination using dye and video cameras. The CAT scan is scheduled to happen on Monday here at the City but Read the rest of this entry »
Posted: October 14th, 2006 | Author: Rob | Filed under: Baby Brussel | 3 Comments »
Today has seen Daniel re-ventilated as he wasn’t able to cope on CPAP any longer. Around 7am they called us to say they had to reventilate him as he just wasn’t coping, his oxygen requirements had crept up overnight so they decided that they had to act on it. His infection count however is still low but it transpires that his right lung has collapsed as fluid has come from the left, infected, one which is the reason why his oxygen requirements had increased. The ear nose and throat specialist has also been to see him today but we are waiting to meet with him/her to see what they have to say about little Dan. There is rumours Read the rest of this entry »
Posted: October 13th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
Well today saw Danny taken off the ventilator and put back onto good old CPAP though this time he’s had a pipe which has been put up his nose. This was done sometime this afternoon and unusually for Dan it was planned. The surgeon also visited Danny today and was able to make a meeting this afternoon as he was in surgery so needless to say that didn’t happen. What he did say was that they now think that his pneumonia might have been caused by his widened airway, due to the balloon (surprise), which has been building up secretions that went into his lung and caused the pneumonia. Read the rest of this entry »
Posted: October 11th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
Dare we say it but Danny has continued to do well again today. He has is still ventilated but he is not on PTV which basically means that he is doing the breathing himself and the ventilator is just there to back him up if he isn’t doing enough for himself. He has also had another blood transfusion as his HB count was a little on the low side but nothing too dramatic so far. We are hoping to sit down with the doctors in charge of Daniels care tomorrow but Read the rest of this entry »
Posted: October 11th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
Firstly an apology for the hap-hazard posting of late. With how poorly little Danny has been my usual posting schedule for the website has been all over the place and that’s not so good for the general public. Rest assured as soon as things calm down I little I will get things back to a “normal” pattern whatever that is. Last night just before we went off to bed Daniel decided to be sick which again was a little old blood which could have been from any number of things such as scrapes from one of his pipes onto the side of his stomach wall so they’re going to keep an eye on that. Read the rest of this entry »
Posted: October 10th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
Once again Daniel is very poorly. Overnight he’s not been well and at around 4am he had an apnoea and needed to be tom thumbed back up. I went down to see how he was; by that time he was settled back down so I stayed for a little while before going back to bed. At a little before 7am we got another call to say that they had to reventilate him as he’d had another apnoea but after 5 mins of tom thumb it was taking him too long. So here we are almost 4 weeks since he first got really poorly with his pneumonia and we’re right back there again, still got pneumonia and now ventilated. Read the rest of this entry »
Posted: October 9th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
Last night, as we all know, was the Live show Birth Night Live which had our little Danny’s story featured and for those that missed it he was in the Sunday Times too. One thing that became clear was TV is not glamorous and was really about waiting and waiting. We arrived at 7pm and then sat waiting ’til we were called in at 9.20pm. What did happen though was when the professor arrived we had a chance to fill him in on what has happened so far. The last time we saw him was on the 6th July when he popped Danny’s balloon so there was much to catch up on. Read the rest of this entry »
Posted: October 8th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
Well the time comes closer as we sit here in the waiting area for the live show. At the moment our part is due to be on around 9.20 but that may change yet, so fingers crossed we don’t make a hash of it. Danny isn’t so good today as once again he has a bout of pneumonia so the sooner we get back the better. See u all soon though
Posted: October 7th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
When we returned back from the Queens to the City there has been this mysterious appearence of little black boxes around the room that Dan’s in. We have asked the nurses what they are and the first one said “Bugs”, then she said that she wasn’t sure maybe for tempature monitoring or something. Later on another nurse said that they were for background radiation from x-rays. However, this said there seems to be three around Danny’s cot and Read the rest of this entry »
Posted: October 7th, 2006 | Author: Rob | Filed under: Baby Brussel | No Comments »
I have to ask myself whether there is a 12 week rule in the neonatal care world. The reason for this is when Daniel started to reach 12 weeks old we were told that he needed an operation that had to be done at the Queens as the equipment needed was not available at the City. Read the rest of this entry »