- 14
- Oct
Today has seen Daniel re-ventilated as he wasn’t able to cope on CPAP any longer. Around 7am they called us to say they had to reventilate him as he just wasn’t coping, his oxygen requirements had crept up overnight so they decided that they had to act on it. His infection count however is still low but it transpires that his right lung has collapsed as fluid has come from the left, infected, one which is the reason why his oxygen requirements had increased. The ear nose and throat specialist has also been to see him today but we are waiting to meet with him/her to see what they have to say about little Dan. There is rumours about a possible transfer to Great Ormond Street hospital (GOSH) but there is nothing planned as yet but this is a possibility if he needs work on his airways. We have also spoken to the Professor in London about Daniels current progress as he was keen to discuss this, we told of how he may be moved down to GOSH, he said that this would be the best place he could be and he would be able to monitor him more closely. So here we are, back again feeling as though no progress has been made but always hopeful.
On a side note thanks to Chris and Andrea (Julie’s brother and sister-in-law) for bailing us out at the last minute, as I had not organised anywhere for the kids in the blind hope Dan would be better by now. The kids have gone to stay there, much to their approval as Chris has plenty of games that they kids love so cheers guys you really got us out of it.
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October 14th, 2006 at 12:50
This is the first time we have looked at the website, its very informative and we will keep looking for your latest postings. Hope you and julie are bearing up and we are all thinking about you. please do not hesitate to contact us if you need any help with anything. See you soon
love sandra and family
October 14th, 2006 at 22:11
Hi Julie, Rob, Thomas and Daniel
Just wanted to let you know that although we made it down the corridor and to the door, we’ve not stopped thinking about you. We watched the documentary last night and i will certainly keep checking up on Daniel’s progress. Wishing you all lots of love, Debbie, Simon and Neve. xxx
October 15th, 2006 at 10:04
Thanks guys, it’s great to know we got folks out there just rooting for him. It always seems like everyone escapes except us but that may be changing as there’s a transfer to Great Ormond Street on the cards so we’ll see.
Thanks again