Mr Popular
Tuesday, October 31st, 2006As each day passes this site continues to amaze me in the interest that it has generated in our little boys fight. The site has his some all-time records (for us anyway). This month has seen over 300 unique visitors serving up over 20,000 pages now. Visitors have ranged from Leeds, Leicester, Manchester, Birmingham, London and even a visit from the BBC! So lets continue to spread the word and hope that our experiences help some other family that may find themselves in the same position.
The last four days have seen a few new developments. On Friday the ENT surgeon arrived to discuss Daniel with Julie, I couldn’t be there as I was working. They discussed the possibility of Danny having his tracheostomy performed here in Nottingham either at the Queens or here at the City. Now we know of this surgeon already as her performed surgery on a friend on mine’s little girl. They had nothing but good things to say about him so this helped a great deal when he was speaking to us. He said that time is of the essence as Daniel’s development is being hampered by the events over the last 6 weeks which is what Julie had said in her previous meeting with the consultant. He said
Since Thursday’s last posting quite a bit has happened but I didn’t post last night as I wasn’t feeling well so sorry about that. Anyhow, Friday morning started out with the meeting with the consultant who wanted to discuss what was going to be happening with Danny with regard to the CT scan and GOS. He asked what my understanding was of what was happening with regard to GOS so I explained as far as we were concerned he was being transferred to GOS and that he would be treated from there. He said that this was not the case and he would simply go down to London to have his tracheotomy performed and then would be returned back to the Queens to continue his treatment. As I explained and indeed he already realised this was going to be a real problem as we do not feel confident in the services that Daniel received while he was at the Queens recently and what both myself and Julie had experienced
This morning we spoke with the consultant on duty to discuss what our wishes were with regard to Daniel’s further treatment. We explained that we wanted him to be transferred and treated at GOSH as we feel that given Danny’s rare conditions that he would be better treated there, this combined with our recent experience with on the Neonatal unit at the Queens we feel that Daniel’s need’s will be better fulfilled at one of the top peodiatric hospitals in Britain. While he did not feel that his departure to London was necessary at this time he did understand what we were saying and this process would be put into motion and we will be notified as soon as the arrangements are made. While this is not going to be cheap arrangement, what with my traveling down to London each weekend, congestion charges etc