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Danny’s transfer was due to happen at 2pm today, so I dutifully re-arranged (yet again) my appointments to start a little later so I could speak to the surgeon at 8.45. Only at 8am we had a call to say the doctor for the transfer was not available this afternoon so he was being moved this morning instead!!! Just great so again I have re-arranged my appointments around the doctors, only the forth time this week. We spoke with the surgeon and with reluctance accepted that Danny needs to be transferred for the operation but once again we made it clear he was only to stay until he was stable before he must come back to where he is. This is probably about the 10th person we have said this to so hopefully the message is clear, and this was agreed. So the transport unit turned up and after a couple of hours he was ready to transfer, they asked if we were following them around and Julie said that she’d been told she would be able to travel in the ambulance with Dan. She was told no as there was only 3 seats and they were all taken, which it transpire was so a junior nurse could experience the transport routine. So Jules was gutted, again, and we travelled behind the ambulance. Once he was there we had to wait in a room while they sortd him out. When we went in he was quite settled as he was still drugged up from the journey, we went for a bite to eat and then I had to go off to work.
About half hour ago I got a call from Julie and it turns out that one of the doctors at the Queens had been speaking from a doctor where we had come from and had been told that Daniel was to be transferred to the pediatric after his operation and was not to be transferred back. Needless to say we are both completely fuming, the whole basis of this is that Danny is to be transferred back once he was stable following the operation. At this point being at the Queens is physically making Julie sick after what happened in the past. The plain truth is he is not stopping there, they will be told either he returns to the neonatal unit where he came from or he goes to Derby City. If he goes to Derby City then we will be making our experience very public as the way we have been treated this week has been nothing short of diabolical.

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