• 28
  • Aug

On ward rounds the doctor said that he wants to speak with Julie and myself to discuss daniels progress. Basically this is because we are going round in circles and they want to formulate a plan. I know it isn’t the case, or I hope not, but it feels like they want us to tell them what to do. It is so frustrating to be here looking at our boy who looks so perfect but know he can’t manage without all this help.

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