- 28
- Aug
We spoke with the doctor and he explained what had happened to his food pipe as a result of the balloon and how this had affected the reflux problem. He also explained how the acid was coming back up and causing his food pipe to bleed as it is not supposed to handle stomach acid. He explained that there are three options; one is to change him back to feeds every 4hrs with gaviscon for now and to stop the gaviscon if he doesn’t improve. The second will be to have another contrast done if he doesnt improve and then feed another NJ tube through at the same time to his intestines. The third option, which is not being considered at present, would be to use part of the stomach to tighten the food pipe opening to limit reflux.
We were asked for our thoughts abd we have asked that they contact Mr Patell, the surgeon at Kings College in London, to get his input as this is the first baby that nottingham has had with a tracheal occlusion. The biggest fear now is that they really dont know what to do next and it just feels as though we are just running around in circles, as though the same things are being tried over and over and getting the same results.
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