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When I got there tonight Daniel was completely off CPAP and had no ventilation, sorry was too shocked to get a picture. Turned out they’d had him off for 20 mins while they changed some pipes or something, he had been absolutely fine while he had been off too. He had to go back on again but it was great to see him off it.
A little later on while I was with him he was wide awake for ages (see video) and while I know it was wind he was smiling, I know wind (again see video), but it was still awesome to see it. Such simple things that were taken a little for granted with the other kids is now so precious.

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