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We have just come back from the scan….wow. We went down to the scanning room, once again TV crew in toe, not really knowing what to hope for. The professor had told us on previous patients there had been an improvement in lung size within a matter of hours but this is not always the case. Once we were in the scanning room and the TV crew had organised the room just the way they wanted it (John, what a legend), the professor came in. He began the scan and showed that the lungs were showing, clearly for the first time our little miracle was showing two lungs clearly, the feeling was overwhelming. (more…)

since the operation or as the medics prefer to call it ‘the procedure’ we have been for an MRI. This has showed that our little brussel’s lungs are starting to fill with fluid which is excellent news. We are both now starting to feel more positive that things could be on the up. If little brussel survives all of this the he truly is a little miracle.

Well they have done the procedure and we are told that it could not have gone better. Our little brussel, unlike his brother, cooperated perfectly. When they inserted the camera they showed us his nose and his mouth as they went in, it was amazing. Up until then for a bloke its not really real but to see his face was just awsome. Julie was a real star, I am so proud of what she is going through to give him the best start that she can. After the procedure was complete John, the camera man, said that it was perfect. he said the last one they filmed took over 2 hours whereas ours was just 30 mins. Now we have too wait and see what will happen; I now feel a little more at ease but i still dare not hope too much as there is still a long way to go yet.

After a 3hr journey from home we finally arrived at kings college hospital around 15:40. We made our way onto the ward where we had met the professor last week; waiting for us was Ben, the co-ordinator and all around nice guy and also the film crew. These are the guys who will be overseeing the whole process for a documentary that is being produced on the CDH (Congenital Diaphragmatic Hernia) condition. Following the initial introductions we got straight down to the process of scanning, unlike our last visit the whole process was to be much more draw out as everything had to be run as per the requirements of the film crew (who incidentally were a really great bunch of people). (more…)